Monday 15 January 2018

Endometriosis Revisited



So, after having excision surgery in October 2016 I was feeling great and ready to start living a pain free life. Afterwards I wasn’t put on any kind of hormone treatment as doctors suggest if you’re able to do so, to start trying for a child. After the first month had passed I was still sore and still in a little pain, but no way near what I had previously been in. It was December and I’d gone back to my doctor for more pain medication, he asked me how I was feeling and how I was getting on. I told him I was still sore and in pain but feeling good, I was told to keep a note of how I was feeling to take with me to my follow up. Everyone’s recovery time is different, so it can be difficult to know what pain is from healing and what isn’t. My follow up was 4 months after the surgery and by that point I was now bleeding irregularly and heavily again. I was also back to being in pain during my period. My specialist was certain the endometriosis was already growing back due to not being on anything to help stop the regrowth. I was told the most successful time to get pregnant was up to 6 months after surgery and that time frame was almost over. I was told before surgery that it probably wouldn’t increase my chances of conceiving naturally and I would most likely need help to conceive. So, I was referred to the fertility clinic as well as being prescribed more pain killers and told we would see where we are, at my follow up in another 6 months. Over the next 6 months it got worse and I just felt so drained and helpless. I was put on the mini pill to try to stop my cycle and to stop me from loosing anymore eggs as I have a low reserve for a woman of my age. The first month and the pill seemed to be working, but almost as soon as I’d started taking the second pack I had started to get break through bleeding. I was told it was normal and unfortunately there is nothing that can be done about it. I was on my third pack and still bleeding irregularly and I was due to get married in a few weeks. That was honestly my worst nightmare, worrying about wearing a huge white dress whilst bleeding. I phoned my GP to ask about a pill I had been told about that you could take for 3 days and it would suppress your cycle. She said they were actually stopping the prescribing of this on the NHS but she would give me the prescription as a one off. Thankfully taking this on the 3 days up to my wedding stopped the bleeding. Although it was halfway through December and I had started bleeding again, luckily there was barely any pain. But on New years eve I woke up with the most awful stomach cramps and feeling so nauseated, I thought brilliant what a way to start the new year. Since then my abdominal pain has come back with vengeance and not in any particular pattern. I try to take my painkillers as little as possible being that they are so strong, but recently its been so difficult to fall asleep and then intern wake up and get out of bed as the painkillers make me feel so sluggish. I know I will need further surgery but it’s a case of waiting to see where my fertility treatment will go.

For more information or support I have posted a link below.




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